Patients

Join Our Investigator Community for Advancing Clinical Development of new Therapies in Patients with DNASE1L3 Deficiency

Investigator Information

Please take a moment to provide some information about your work and patient demographics.

PI Information:

Name of Investigator

Affiliated Institution

DNASE1L3 Deficiency Patients:

How many patients with diagnosed and suspected DNASE1L3 Deficiency are you currently following?

Diagnosed

Suspected

Patient Age:

How many of these patients are...

Pediatric (<18 years of age) ?

Adults (≥18 years of age) ?

Other?

Patient Conditions:

How many of your patients have the following DNASE1L3 Deficiency phenotypes?

HUV/HUVS?

SLE?

Other?

Patient Status:

How many of your patients with DNASE1L3 Deficiency have...

Active Symptoms?

Remission?

How many patients are suffering of end-stage organ damage?

Trial Enrollment Potential:

How many of your patients could you potentially enroll in a clinical trial with a DNASE1L3 enzyme?

How many of your patients could you potentially enroll in a clinical trial with a DNASE1L3 enzyme that requires weekly IV infusions?

How many of your patients could you potentially enroll in a clinical trial with a DNASE1L3 enzyme that requires weekly SC infusions?

Support Needs:

Would you need any assistance from Neutrolis for your site to participate in this study?

Yes No

Would you need any assistance from Neutrolis for your patients to participate in this study (transportation, meal vouchers, lodging, etc.)?

Yes No

Genetic Testing Assistance:

Would you need help from Neutrolis with genetic testing for your patients?

Yes No

Thank you!

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